Through My Eyes

Some people say I talk too much, that I always have a story to tell. I don't know what's round the corner so my blog is about life through my eyes and making every day count.

Archive for the tag “results”

More results and news!

So I got a letter through the post with an appointment for the 3rd Dec. I didn’t understand this at all, surely I couldn’t be expected to wait till the 3rd Dec for results?!
I rang my point of contact (the breast care nurse) straight away and just got voicemail. I then spent the rest of the day ringing her, the ward, the clinic and every number I had but nobody picked up. It was 6.30 pm when I finally got hold of her. She didn’t know anything about the appointment but said she could look on the computer for my results.
So here we are, the results!
She started reading them out and it was all medical terms I had never heard of, I was trying to write them down to google when I got off the phone! The main part of the results is that they have found a small area where the cancer cells are not in the ducts anymore so now classed as invasive. The good news is that the areas were very small and only grade 1.

It was quite difficult being told this over the phone because as much as I wanted to know, it was the nurse telling me so not the consultants so she couldn’t answer a lot of my questions. I will have an appointment next week to find out what treatment I have to have following this new discovery.

Whenever I tell anyone the new results they are all so positive which is good to be but sometimes I don’t think they actually understand or have a clue what a big deal this is!

The funny this is though that I am actually struggling to say the C word out loud! Is that normal?! I mean before these results I was telling everyone I had DCIS, so when people asked me I explained I had DCIS and did not even mention the word cancer! Now it’s invasive I need to face the fact that it is breast cancer and try telling people this. Someone asked the other day and I started talking about DCIS and invasive and Allsorts and they looked so confused! I am sure if I just said Breast Cancer then I would have made more sense but couldn’t say it!

One way I have found some support is in the way of a Facebook group aimed at younger women with breast cancer. I joined this group but didn’t expect much as I have joined forums before and not has many answers to my questions and posts. The first thing I liked was everyone saying welcome to me, I thought this was so nice. I then started looking at the people in the group and the people replying to me, as strange as it sounds the people were like me, they were young and pretty (not saying I’m pretty) and spoke like me like on the same wavelength!
When I was in hospital everyone on the ward was at least 50 years old, now I’m saying it is any easier getting the diagnosis as am older woman as it isn’t but I felt like I was the odd one out and on the wrong ward!
So I start posting in the group and I got so many replies. I have only been in the group 2 days and feel like I’m part of something, like I’m not alone and; these women are so easy to speak to and so nice. I am really glad I found this group.
So the wait goes on, only till next week though to find out what treatment I am having.
Despite this bad news I still feel ok, I don’t feel like crying or being negative, yes it’s worse than the DCIS but it’s only grade 1 cancer so perfectly treatable. Yes it’s not great but there’s a lot of people that I have met throughout this journey that are a lot worse and so I’m not going to get down about this and make a big deal out of it!

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A Nightmare day!

12th November 2013, my appointment date for the clinic, the first appointment since the operation and first time out the house.
Since the operation I have been at home, hair scraped back and Pyjamas on, not to mention the drain iv been carrying around that is attached to my back so not very attractive!
I thought I would take the opportunity to make an effort, put a bit of make up on as besides the fact my consultant is a bit of a dish I wanted to start looking and feeling better about myself! As we left the house I grabbed my appointment letter and off we went.
As we got to the hospital I had a quick look at the appointment letter and it said Tuesday the 22nd…. What?! It’s the 12th and here we are at the appointment! I felt like such an idiot and couldn’t say sorry enough to my mum who had driven me. As we were in Leeds we decided to make the most of my mistake and go shopping! Not something I would recommend anyone does a week after a large operation while still having a drain attached! I tried to keep the drain in my handbag but still got some strange looks!
After about half an hour and a few new outfits later the phone rang… The hospital asking where I was?? Now I was really confused, we had got to the hospital thinking there was an appointment today only to check the letter and it say the 22nd?! I got the letter out my bag again to see it said Tuesday 22nd October, not November! I had only brought the wrong letter, an old appointment card! I felt like such an idiot, luckily the hospital agreed to fit me in and see me but by then the dishy consultant had gone home so it was left for the nurse to take my drain out, check my dressings and give me some results!
Now I would love to be able to explain the results I really would but if I’m honest they didn’t make much sense and were pretty much inconclusive and awaiting further test results! So really there were no new developments and I have to wait until next week for any certain results! I would have rathered they just didn’t tell me anything rather than say the results are inconclusive as that only puts more worry in my mind for a week till I know for sure!
What a carry on I had but the good thing is that I got all my dressings off and got the drain out which makes life at home a whole lot easier and more comfortable!
I just need to wait for the results now, more waiting!

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