Through My Eyes

Some people say I talk too much, that I always have a story to tell. I don't know what's round the corner so my blog is about life through my eyes and making every day count.

Archive for the tag “NHS”

More NHS let downs 

In previous posts I have talked about many experiences with the NHS good and bad, I have referred back to experiences I have had when dealing with Breast Cancer but also experiences I have regularly with my daughters asthma problems. 
So here we are again, being g in hospital is not unusual for Megan. As mentioned in previous posts we have regular trips to the hospital with wheezing and chest issues. This year it has escalated to a new level and a lot more serious. When things get more serious and more life threatening it means I rely on the experts more to help me and Megan and get her the best treatment in the fastest time possible. Unfortunately that hasn’t happened this time and I feel due to massive NHS failures we have ended up back in ICU in a very serious condition. 

Without going into detail of each individual situation I have witnessed so many floors in the system that I wonder why I pay my national insurance. I have witnessed A&E doctors yawning throughout examining patients and complain of being tired. I have witnessed doctors looking at X-rays and missing the fact there’s a huge infection on a lung. 6 hour waiting times in A&E with a girl having an asthma attack left untreated. The list goes on. Its worrying when it takes 10 minutes or less for a child to die of asthma. It’s so worrying and the reality is that it’s not Getting any better, I read on the news weekly about various cuts being made to funding, hospitals being closed, services cut. Staff work all ours for very little pay and then are so tired they are putting people’s lives at risk, I pay my taxes yet it seems the more we pay the less we get. Don’t get me wrong the NHS do some amazing things and it’s not all bad, I give credit to the staff that work all hours and save lives and do wonderful things. Unfortunately I can’t say I have experienced anything positive lately and it really makes me concerned about the future of our health service 

The NHS… Our wonderful health system

Warning…. This is a long post, i have a lot to say!!!
So, it’s been a while before I have posted anything, I have been in hospital having a mastectomy with immediate reconstruction.
I will talk about this in more detail later I think but for know I want to mention yet again the NHS.
The reason I talk so much about the NHS is because this is the first big operation i have had, the first time in my life iv had a health problem and after paying my taxes all my life I expected a little more from them!
So I go into the operation, 6 hours later wake up in immense pain which the morphine soon sorted out!
So 2 days in I haven’t left my bed, am still in immense pain but controlling it with morphine which although makes me feel drunk helps a lot.
2 nurses come into my room and tell me I need to be up and walking now. I explain that not only is the pain awful but the morphine makes me feel very sick and dizzy. They told me that they have to have patients up and about by now and sat me up in bed telling me to sit up!
I asked what the rush is and they said its routine! Well I didn’t want to be part of this just because it’s policy and routine when my body was telling me I wasn’t ready.
At this point I felt like a number not a person. I stood up in awful pain and was so dizzy I asked to sit down but they wouldn’t let me, they got that cross at me I ended up in tears so they let me lie down again. As a patient having just had an awful operation this is not what I expected at all.
The next day the surgeon visited me to check everything and I asked him if I need to be walking around, he said no, only when I feel I can as i have had a big operation so no need to rush anything! So why did the nurses feel the need to push this? Is it to tick a box saying they have had me out of bed walking!
3 days in I felt I could get out of bed into a chair which I did to enable the nurses to help me have a wash, I can’t say how good it felt to be clean again! Unless I pressed the buzzer I was just left on my own for hours do just slept.
Another 2 days went by and I asked for a wash again, the nurses said ok and then never came back, I fell asleep and didn’t get woken for a wash and before I knew it was the next day. I asked again that afternoon and the nurse said no problem and we would have a wash before bed time as such. It got to about 9.pm and I called the nurse for my wash who said she couldn’t do it but she could get me a bowl of water! Given I had 4 drains attached and wires and my movement was limited I really needed help!
I said I would wait until the next day and suprise suprise nobody came to help me wash!
I was due to be discharged the day after so when that day arrived if given up asking for a wash so just waited till I got home, I’d gone 4 days without a wash so was pretty annoyed!
On my day of discharge it got to dinner time, I was sleeping when they came in and said that someone needed my bed so could I pack my stuff and go wait in the waiting room! I wasn’t due to leave the hospital till tea time so I had to clarify, did they actually expect me to sit in the waiting room for hours after major surgery and yes they did!
Yes I had a mastectomy but I also had a reconstruction which involved taking muscle from my back so as you can imagine not only my front but my back was very painful, not only that but having not washed me they expected me to go sit in a tiny room with random people/visitors/outpatients when I was in my pyjamas not smelling so fresh!
I was so upset that eventually they found me a bed in the corner of a ward but I still got chucked out my room!
While sat on the ward a little old lady realised she had cut her finger and asked for a plaster, 20 min later she still hadn’t got a plaster! The nurses were running about like there was a crisis but in actual fact that was just normal and they were really understaffed!
I heard an alarm going off indicating someone needed something, it may have just been a drink and not urgent but then may have been that someone was stuck in the bathroom or had fallen for example. Either way it went on for 15 min before it was responded to!
Anyway I think my whole experience sums up the state of our health service. Understaffed wards,overworked nurses, patients not getting what they need. I’m not sure what the answer is really other than someone else in charge of the government!!
All in all I was glad to be home!

Private Healthcare or NHS?!

I would say the start of all my health issues was April 2013, from that point when I had my first GP appointment till now seems to have been a long & stressful time and yet I’m nowhere even near the light at the end of the tunnel!

My first frustration was that the cancer cells were only discovered as a result of a separate operation that i had actually been advised not to have but pushed for it.
This left me thinking what would have happened if I had not pushed for this operation? I would have not known I had this condition till it was too late maybe!

From the point I actually got the diagnoses of DCIS and told I needed a mastectomy I started doing research on the Internet. The option of going private was always in my mind as I want the best care, surgery and results. But then I thought no, I work hard and pay my taxes and expect a decent surgeon and operation on the NHS.
One think I did do though was refer myself to another hospital an hour away as this had a specialised cancer centre.

So my first appointment with this expert surgeon was yesterday at 11.am but I didn’t get seen till 2.45. Now I appreciate there can be delays but sat on a chair waiting for nearly 4 hours was a nightmare!
Then when I saw this surgeon he wanted to do more tests as there were some key tests hadn’t been done before diagnosing me and telling me I needed this operation. So why has it taken 6 months of appointments and waiting around to now be told I need more tests as some have not been done! And it’s not like I have a cold here or a migraine!
To me this is 6 months spent making errors when I could have started treatment for what could be a life threatening disease!
I am still continuing with the NHS as things seem to be moving quicker one but has still left me wondering if going private would have been the way forward to get things done properly and a lot quicker!!
What annoys me the most is when I have googled DCIS it shows a list of symptoms, I had all of these which is why I first went to my GP. Knowing my symptoms were a big sign of cancer I would have expected a mammogram but only got an ultrasound scan which does not actually show cancer. As a result of that I got told I had inflamed ducts and to leave it for 3 months and to return if it was no better! So I had cancer in me for 3 months, possibly growing and getting worse and the hospital missed this and sent me home for 3 months! Just makes you wonder what we pay our taxes for!!

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