Our 5 month struggle
And so it goes on… I have mentioned in previous posts about M’s asthma causing us problems and how it never stops her doing anything, well 5 months into the year and we are still in hospital struggling to get answers. Ok so we have not been in for 5 months in total but I think the longest we have been at home is 2 weeks.
We talk about her asthma but this could be something different yet, we are unsure. M had terrible chest pains in January which we were told were muscular, turns out it was pluracy after a terrible chest infection hadn’t been treated. Since then we have had numerous ICU visits and spent most of a 5 month period in hospital. M has had the strongest tablets and anti biotics in hospital and yet the infection and fluid still comes back, builds up then restricts her airways. The hospital seem to be fixing her while she’s in hospital so that her obs look good then sending her home when really we are no further forward! Last time we were out of hospital for 5 days before the fluid was back and straight back into intensive care.
So where are we now, M’s still in hospital on the usual antibiotics and steroids and we have a CT scan booked for Wednesday. I have also asked to be referred to Newcastle hospital to get a second opinion. Hopefully we will get some answers soon although in my opinion this shouldn’t have gone on for 5 months!!
The hospital is 45 min away so going to work all day then to hospital is tiring.
For the past 5 months we have tried to juggle work, housework, eating and sleeping and being at hospital as much as we can for M.
Poor M hasn’t seen her friends for months or played football or been to school really. She always smiles though and that keeps me going.
Feeling physically and mentally exhausted but have to keep going and hopefully we will get our life back soon!