Through My Eyes

Some people say I talk too much, that I always have a story to tell. I don't know what's round the corner so my blog is about life through my eyes and making every day count.

Archive for the month “May, 2017”

And so it goes on 

So out of hospital a week, The bronchoscopy was last Thursday and that went well. It was the first time Megan had a general anaesthetic and she was so poorly afterwards, she had a fever and was quite sick but luckily it only lasted a night. 

Then there was the bank holiday, really good weekend, sunny weather and lazy days in the garden. Then came the bank holiday Monday and Megan’s chest got bad again, starting with the cough then the shortness of breaths and at 5.35 we packed a bag and headed Back to hospital. 

1 night in intensive care later we are back on the normal ward and showing no sign of going home soon. Great half term this is going to be for Megan. 

So 3 nights in I’m lay in bed yet again without Megan at home and it’s so difficult knowing she is at hospital on her own.  We have been doing this for 5 months now and it doesn’t get any easier. Financially it takes its toll with all the time off work, the fuel and extra money spent. It’s also mentally draining, all the worry and stress and then trying to be focused at work as well. It’s so hard, I just want my girl home without the worry of her going back to hospital again. 

Progress

Wednesday the 17th May 2017…. 

picked Megan up from hospital to take her to another hospital for a CT scan, the long awaited CT scan than was going to solve all the doctors problems! Following the CT scan we had an appointment at Newcastle RVI. It was a referral I had requested to try and get some answers. On arrival we parked in the multi storey and were wowed by the size of the hospital. Very modern and  good facilities. We went to outpatients and again were very impressed by the clinic and it’s organisation, everything colour coded and running to time. 

We had been to referred to see Mike Mcean who is the top guy at this hospital and waist a guy he was! We learnt more about asthma in the hour we were there than we had in 5 months of trying to find answers. He brought up other things that hadn’t been mentioned before such as anxiety and worry, something to think about as life as a teenager is never straight forward! 

He booked Megan straight in for a bronchoscopy for a week later and so put a plan in place going forward. For the first time in 5 months I feel Megan might be making progress. It’s the best feeling in the world!

Just shows what a different opinion and different hospital can do! I know everyone at a consultant level is at a high standard and expert in their area but sometimes a second set of eyes on the situation can make all the difference. Hopefully now we will get some answers and be able to move forwards! 

Our 5 month struggle 

And so it goes on… I have mentioned in previous posts about Megan’s asthma causing us problems and how it never stops her doing anything, well 5 months into the year and we are still in hospital struggling to get answers. Ok so we have not been in for 5 months in total but I think the longest we have been at home is 2 weeks.

We talk about her asthma but this could be something different yet, we are unsure. Megan had terrible chest pains in January which we were told were muscular, turns out it was pluracy after a terrible chest infection hadn’t been treated. Since then we have had numerous ICU visits and spent most of a 5 month period in hospital. Megan has had the strongest tablets and anti biotics in hospital and yet the infection and fluid still comes back, builds up then restricts her airways. The hospital seem to be fixing her while she’s in hospital so that her obs look good then sending her home when really we are no further forward! Last time we were out of hospital for 5 days before the fluid was back and straight back into intensive care. 

So where are we now, Megan’s still in hospital on the usual antibiotics and steroids and we have a CT scan booked for Wednesday. I have also asked to be referred to Newcastle hospital to get a second opinion. Hopefully we will get some answers soon although in my opinion this shouldn’t have gone on for 5 months!! 

The hospital is 45 min away so going to work all day then to hospital is tiring. 

For the past 5 months we have tried to juggle work, housework, eating and sleeping and being at hospital as much as we can for Megan. 

Poor Megan hasn’t seen her friends for months or played football or been to school really. She always smiles though and that keeps me going. 

Feeling physically and mentally exhausted but have to keep going and hopefully we will get our life back soon! 

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